Struggling with Lyme disease

A personal blog about nightshades, grains, dairy, Lyme Disease… oh my!
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Going to start treatment for Bartonella


I had my visit with the new doctor last Tuesday.  I left at 5:00am in the morning in order to get there in time and I was almost late.  ugh!  On a positive note, I didn’t need to get gas until I got home and I still could have driven another 70 miles.  I love my Prius  :-)

Okay, so, after seeing this doctor, she thinks we should treat for Bartonella which completely went with what I was thinking when I went in there.  I’ve started anti-fungals first (Nystatin, Diflucan) and then I’ll start the first antibiotic next week.  Then I’ll add the second antibiotic a week after that.  My fingers are crossed that treatment will help this time.  I think most doctors treat bartonella last, so I was happy to hear that she looked at my symptoms and examined me and said bartonella first.

I wish I could get my money refunded for all of the past treatments that did nothing.  sigh.  Just think of all the money I would have now!  I was gathering my things into a plastic bin to take with to see this doctor and I had a whole plastic bag full of empty prescription bottles.  Reminded me of that scene in the movie “Under Our Skin” about Lyme disease where it showed one man emptying all of his empty pill bottles into a huge pile.  He said he spent hundreds of thousands of dollars on treatments that didn’t work.

I was more prepared for my appointment than I thought I was going in to the appointment.  If I have any advice for you it would be to keep journals of all of your pains and weirdness every day.  Also make note of what you eat and drink.  Because I had been doing that, I was able to go back to early 2011 and read my reaction to an antibiotic that I was given for bladder infection.  I remembered “not tolerating it” but going back to read it made me realize that I was actually Herxing on it.  (A herx is a die-off reaction when you kill off a bug)  This lead me to look into what that drug would affect and Bartonella showed up on the list.  Yay me for writing it down!

Here’s a link to my post about keeping a journal:

4 Comments to

“Going to start treatment for Bartonella”

  1. On September 2nd, 2012 at 5:06 am Aldert Says:

    I came across your blog googling for nightshades and solanine contents in potatoes.
    Seeing that you are going to a new doctor I must give you this link:
    Hoping that it might give you answers on your quest to health.

    All the best from france,

  2. On September 2nd, 2012 at 1:39 pm michele Says:

    Hi, I just wanted to ask you a question about Bartonella and Lyme disease and Babesioses. Are all of these the same thing? I go back to my doctor this month and I have Lupus, MS and other things that I have been to over 100′s of doctors for help on. Nothing helps, of course, but do I ask the doctor to test my blood for these? Can it be detected from blood test? I hope you can help me. Thank you, Michele

  3. On September 4th, 2012 at 9:17 am jenifer Says:

    Huh, that’s interesting. I don’t quite understand it all, but it seems to link a lot of the symptoms together nicely. I passed the link on to my Lyme message group.

  4. On September 4th, 2012 at 9:25 am jenifer Says:

    Hi Michele! I’m going to do an entire post with my reply because I have a lot to say and this little box in comments is just too small :-) So, give me about a half hour or so to compose a post with my response.

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