Struggling with Lyme disease

A personal blog about nightshades, grains, dairy, Lyme Disease… oh my!
Also see my listing of Nightshades

A general update… still a trial and error


I received a comment that I hadn’t written an update in a while and I realized that yes, I hadn’t!  Time totally got away from me.  So, let’s see, what has happened since my last post -wow- almost a year ago now??  oops!

I had stopped seeing the doctor I was seeing because I wasn’t seeing any progress or changes at all.  I then joined a Lyme Study in January 2015 in hopes of finding any answers to the chronic fatigue, fibromyalgia, and neurological issues.  I got the iSpot Lyme test done (which came back negative) and had another Western Blot done (that also came back negative).  I know the tests aren’t very accurate, but it still led me to think there was more going on.

So, this new doctor took some blood and ran some more tests.  He adjusted my thyroid medication and started me on some supplements.  For the first time I got my brain back!  I still have a ton of other symptoms to work through, but this is the first time in 4 to 5 years that something positive has come of all of these doctors.

I’m hopeful that things will continue to progress as we peel all of the layers off of the onion :-)   I just wish it would happen sooner, lol.  Next appointment is in 3 months.

One Comment to

“A general update… still a trial and error”

  1. On August 2nd, 2015 at 3:02 pm valerye Says:

    Thank you so much for sharing all this. i was sensitive to potatoes until I ‘overdosed’ on peppers and tomatoes this year (roast pepper and tomato soup!!) and reached a crisis point – I now have sensitvity to all nightshades so your list is really helpful. I came out in large black bruises and the hospital took 11 tubes of blood for testing – results 20th August but I feel it is all due to the nightshades. Thanks again.

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